Programs

Pediatric Hemophilia Services

Comprehensive Care

Complete physical, social, and psychological evaluation of the bleeding disorder and family including:

  • Hematology
  • Hematology Nurse Practitioner
  • Nursing
  • Psychology
  • Social Work
  • Physical Therapy
  • Nutrition
  • Lab
  • Genetic Counseling
  • Dental

Care Coordination

Our pediatric team is dedicated to caring specifically for pediatric patients with bleeding disorders, providing the following services:

  • Education
  • Triage
  • Tailored treatment plans for surgical or dental procedures
  • Physical therapy
  • Insurance needs
  • Referrals to specialists, as needed
  • Medication and procedure authorization
  • Home care needs
  • Factor needs
  • Ongoing follow-up
  • Coordination of care with primary care provider

Psychosocial Programs

Our psychosocial programs are designed to meet the individual needs of each patient and their families and seek to improve quality of life. Included are the following:

  • Full-time psychologist
  • Full-time social worker
  • Counseling services
  • Educational services
  • Reimbursement/financial issues
  • Resource referrals
  • Supportive services, including support groups

Research

Individuals at our center have the opportunity to participate in multiple clinical trials. Clinical trials are critical to improving the care of patients with bleeding disorders. 

Dental

We work collaboratively with the AT Still Dental School to provide routine and restorative dental care to individuals with bleeding disorders, while ensuring adequate hemostasis surrounding invasive dental procedures. In addition, we provide financial support for individuals with bleeding disorders who are under or uninsured.

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