Programs

Pediatric Histiocytosis Program at Phoenix Children's Hospital

The best treatment for children with Histiocytosis

 

As the only dedicated pediatric Histiocytosis team in Arizona, Phoenix Children's Hospital’s Center for Cancer and Blood Disorder provides the best care for kids with Histiocytosis, a group a diseases that are not necessarily cancer, but involve abnormal growth of cells that are part of the immune system, including: Langerhans Cell Histiocytosis (LCH) and Hematophagocytic Lymphohistiocytosis (HLH), among others.

Histiocytosis is a rare blood disease affecting about 1 in 200,000 children born each year in the United States. It is caused by an excess of histiocytes (white blood cells) that can attack the skin, bones, lung, liver, spleen, gums, ears, eyes, and/or the central nervous system. The disease has a wide range of impact on its patients, from a small flare up that goes away on its own to a more serious disease that gets progressively worse, affecting many organs. The disease can be chronic, debilitating, and in some cases, life-threatening. Histiocytosis most commonly shows up in children.

Because Histiocytosis is a rare disease receiving very little government funding, sometimes referred to as an Orphan Disease, most of Phoenix Children’s funding for our clinical and translational research comes through the Histiocyte Society of America.

Our pediatric focus means we understand that children require greater attention and more unique care than the same procedure or treatment for an adult. Our philosophy is to provide care with attention to the patient’s social environment, educational progress and ongoing developmental growth. With diseases, such as Histiocytosis, primarily impacting children, our pediatric focus sets us apart from facilities and physicians primarily treating adults.

Phoenix Children’s Multidisciplinary Approach Treats Whole Child

In many cases, treatment can mean caring for multiple problems, so we address all aspects of a child’s illness in one place. Our unique multidisciplinary approach has brought together the best individuals and practices throughout the hospital to provide complete care and heal the whole child.

Our physicians, nurses, oncologists, child life specialists, social workers, psychologists, psychiatrists, chaplains, radiologists, researchers, school reentry specialists, Camp Rainbow team, and other professionals help families understand their children’s diagnosis, treatments, and the care needed at home and throughout their life. Our specialists understand the concerns and fears kids may have at every stage of the healing process and assist in preparing them for the fastest possible recovery.

A hallmark of our compassionate family-centered care is the wealth of resources we developed to assist the family unit as a whole throughout the healing process. These resources ensure that patients and their loved ones understand the care and treatment being given.

Together, we bring world-class medical and research expertise, as well as hope for a cure for Histiocytic disorders to the Southwestern United States and beyond.

Contact Us

(602) 933-0920

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