Pediatric Histiocytosis Program - FAQs & Answers
Is there a cure for LCH?
While some patients go into remission and may live normal lives with or without treatment, we usually don’t use the term “cure” with this disease. No specific amount of time without active disease has yet been established for adults to determine when a patient is considered to be cured.
How long will my child be in your care?
The length of time we need to treat Histiocytosis patients depends on the type of disease they have. For LCH patients it could be one year of therapy. For HLH patients, the length of treatment varies depending on the cause. Certain infections can be treated in about two months, while other infections may require Bone Marrow Transplantation, which is a much lengthier treatment process.
What are the biggest complications that could occur from Histiocyte Disorders?
Infections, damage to other systems of the body, and second cancers may occur from chemotherapy and radiation used to treat leukemia and lymphoma. Nausea, hair loss, breast cancer (for females later in life), and psychological issues, including depression, are also common complications.
How do I explain Histiocytosis to family and friends?
Histiocytosis is a rare disease that is caused by the over-production of a type of white cell that can lead to organ damage and the formation of tumors. The Histiocytosis Association's Disease Fact Sheets are also a great way to help explain these complicated diseases to family and friends.
Will my child have a normal life?
We will provide care that gives kids the best chance at a normal life. Our pediatric-trained staff understands that kids are still growing and need to be treated differently than adults. Phoenix Children’s provides the least invasive treatment possible using equipment designed specifically with kids in mind.