Research

Pediatric Cancer Registry at Phoenix Children's Hospital

 

The Cancer Registry at Phoenix Children’s Hospital is a systematic collection of information about patients who have been diagnosed with “cancer and certain other benign tumors”.  The information collected is a summary of the patient’s history, diagnosis, staging, treatment and outcomes for a particular disease. 

Phoenix Children’s Hospital follows the collection standards from national trend setters and under the direction of the Arizona Cancer Registry (ACR).  Confidentiality is always followed under the Health Information Portability and Accountability Act of 1996 laws and guidelines.

Background on Cancer Registration

The first hospital based cancer registry was at Yale, New Haven.  The ACR began collecting cancer case information in 1981.  Initially, reporting by hospitals was voluntary.  In 1992, the ACR mandated that all hospitals report under Arizona Revised Statue §36-133.  

The Most Common Types of Childhood Cancer Include:

  • Leukemias
  • Brain Tumors
  • Tumors of the kidney & adrenal gland
  • Bone and Soft Tissue sarcomas
  • Lymphomas

At Phoenix Children’s Hospital, follow-up with our patients is an integral part of the data collection process for the cancer registry. 

Contact Us

If you are a former patient and would like to contact us and tell us how you are doing, please call:

Susan Sullivan, CTR,

Oncology Data Manager

(602) 933-1498

 

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